Life expectancy for a child with CHARGE syndrome
See what the CHARGE syndrome life expectancy is for children and what you need to know about it. Get advice on how to parent a child and how to deal with CHARGE syndrome life expectancy issues.
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Catherine Lacey Dodd
Mom & Photographer
British born and living in Los Angeles, Catherine Lacey Dodd is the mother to Reuben Jack, age five, and Callum Andreas, age four. She’s a work at home mama, owner/photographer at Catherine Lacey Photography and creative writer. Reuben, whose name means, "behold a beloved son", has CHARGE syndrome. He has undergone 18 surgeries including two open heart and countless hospitalizations. Callum is his much longed for brother and his best friend. She created the blog, ReubenJackDodd, which tells her family’s journey through thought-provoking words juxtaposed with eye catching imagery and the sweet faces of her two little loves.